Page 27 - RA2020 FONDATION PIERRE FABRE EN

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HAITI
Sickle cell disease screening and treatment
ACTIONS
• New-born screening and early diagnosis
• Patient monitoring and treatment
• Training healthcare personnel at Saint- Damien Hospital
• Holding awareness sessions
ACHIEVEMENTS IN 2020
• 4,748 screenings
• 1,354 patients enrolled in the group
• Active queue of 920 patients
• Trained 65 healthcare personnel
• Held 3 awareness-raising meetings with parents, adolescents and hospital staff
3 years
(2018-2020)
PARTNERS
Saint-Damien Paediatric Hospital – Université
de la Paix Hospital – State University Hospital
of Haiti – Sickle Cell Disease Association of Haiti
GUINEA
Support for the Sickle Cell Disease Control Centre in Conakry
ACTIONS
• Support for creation of laboratory and pharmacy activities
• Support for training for the centre’s healthcare staff
ACHIEVEMENTS IN 2020
• Opening of the pharmacy and laboratory
• 4,071 sickle cell consultations
• 1,086 hospitalisations
• 1,963 patients in the active queue
• 4,225 people in patient group
3 years
(2019-2021)
PARTNER
SOS Drépanocytaires Guinée Association
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CAMEROON, CONGO- BRAZZAVILLE, MADAGASCAR, DRC, CÔTE D’IVOIRE
Improvement in socio-medical care for sickle cell disease in sub-Saharan Africa
ACTIONS
• Strengthening of the early detection system
• Access to quality healthcare for sickle cell patients and their families
• Training of health personnel in diagnosis and treatment
• Improved understanding of the disease among the gene- ral public
• Structuring of advocacy actions
ACHIEVEMENTS IN 2020
• Training of 1,332 health professionals and students (4,158 since 2018)
• 20,339 screenings
• 4,842 patients treated
• More than 125,000 people informed on disease since 2018 (students, teachers, pregnant women)
3 years
(2018-2020)
PARTNERS
Agence Française de Développement – European Institute for Cooperation and Development (IECD) – Malagasy Institute for Applied Research (IMRA), Madagascar – Health centres supported by IECD in Pointe Noire, Brazzaville - Monkole Hospital in Kinshasa, Democratic Republic of the Congo – Yopougon teaching hospital; Institut Pasteur, Côte d'Ivoire – Institut Pasteur, Cameroon
CENTRAL AFRICAN REPUBLIC
Support for the Bangui Sickle Cell Research and Treatment Centre
ACTIONS
• Training of centre staff in treating sickle cell patients
• Training in initiatives to fight the coronavirus epidemic, recognising suspected carriers and directing them to referral healthcare facilities
• Supporting the supply of essential generic drugs necessary for treating sickle cell patients
ACHIEVEMENTS IN 2020
• 7,883 patient consultations
• 1,463 hospitalisations
• 121 health personnel trained in treating sickle cell disease and fighting Covid-19
3 years
(2019-2021)
PARTNERS
Sickle Cell Research and Treatment Centre (CRTD) in Bangui – CAR Ministry of Health and Population
RESEARCH PROGRAMME: epidemiological study on infant and child mortality attributable to sickle cell disease in five sub-Saharan African countries – MIDAS
BURKINA FASO, CÔTE D’IVOIRE, MALI, DEMOCRATIC REPUBLIC OF THE CONGO AND SENEGAL
ACTIONS
• Data collection by comparing mortality in infants and juveniles from sickle cell families and non-sickle cell families in a sample of 8,352 children
ANTICIPATED IMPACT
• Help improve epidemiological understanding of the disease, which is still inadequately characterised, thereby support advocacy actions
5 years
(2015-2020)
PARTNERS
Inserm unit headed by Professor Xavier Jouven - Institut Necker
Fondation Pierre Fabre – 29
Budget: € 150,000
Budget: € 300,039 Budget: € 300,039
Budget: € 490,000 Budget: € 319,778