Page 26 - RA2020 FONDATION PIERRE FABRE EN

COMBATING SICKLE CELL DISEASE
CURRENT PROGRAMMES
screening, treatment, training, research
LEARN MORE
LEARN MORE
BURKINA FASO
Supporting the Ministry of Health in combating sickle cell disease
ACTIONS
• Support for development of a national policy to fight sickle cell disease
• Implementation of a new-born screening and early diagnosis programme
• Improved patient care
• Reinforced healthcare personnel skills
• Awareness campaigns
ANTICIPATED IMPACT
• Screening of 53,000 new-borns, 18,000 children under 2 and 7,000 pregnant women
• More than 500 healthcare personnel trained in disease treatment
• 1,200 children with sickle cell disease to receive medical treatment
3 years
(2020-2023)
PARTNERS
Burkina Faso Ministry of Health – Sickle-cell Disease Initiative Committee in Burkina – Agence Française de Développement – Groupe d’Intervention d’Hématologie Association
SENEGAL
Screening and early treatment of sickle cell disease
ACTIONS
• Implementation of neonatal screening in the maternity ward of the Saint-Louis teaching hospital
• Begin activity in the maternity ward at the Ngom referral healthcare centre in Saint-Louis
• Samples are analysed in
the CERPAD laboratory and children diagnosed with sickle cell disease are treated in the CERPAD outpatient care unit
ACHIEVEMENTS IN 2020
• 3,997 screenings carried out on 4,414 live births (80.2%)
• 50 children with sickle cell disease diagnosed and treated at CERPAD
7 years
(2013-2020)
PARTNERS
Gaston Berger University – Centre for Sickle Cell Disease Research and Outpatient Treatment Centre (CERPAD)
LEARN MORE
MALI
Development of the Research Centre to Combat Sickle Cell Disease (CRLD)
ACTIONS
• Funding healthcare personnel and purchase of medicines and vaccines
• Establishment of a clinical patient database
• Training programme for healthcare personnel
• Decentralisation of sickle cell disease treatment activities in three health districts (Kayes, Sikasso, Ségou)
• Involvement in research programmes
ACHIEVEMENTS IN 2020
• 12,520 patients enrolled in the group
• 12,730 consultations
• Involvement in nine television programmes to raise awareness
• Attendance at three scientific forums
• 51% of patient records in the group have been digitised
3 years
(2020-2022)
PARTNER
Mali Ministry of Health
RESEARCH PROGRAMME
Study of the impact of the sickle cell trait on malaria transmission – IMPAS
CAMEROON
STUDY PHASES
• Recruit 5,000 healthy individuals with sickle cell trait
• Compare reinfection dynamics between groups
• In mosquitoes, compare malaria transmission by analysing the blood of subjects of the two groups
ANTICIPATED RESULTS
• Based on the study
results, institute adequate educational and prevention measures for people having the trait.
The results of this study will also help raise awareness in the “malaria ecosystem” about sickle cell disease.
3 years
(2019-2022)
PARTNER
Centre Pasteur in Cameroon
Fondation Pierre Fabre – 28
Budget: € 198,341
Budget: € 1,608,000
Budget: € 600,000 Budget: € 530,000